Maureen Kennah-Hafstein is overjoyed at being able to reduce her medication for Parkinson’s Disease after undergoing long-awaited Deep Brain Stimulation surgery. (Martha Wickett/Salmon Arm Observer)

‘Miraculous’ is how Salmon Arm woman describes her treatment for Parkinson’s

After a long wait for Deep Brain Stimulation procedure, excruciating symptoms are disappearing

Despite all she’s been through with Parkinson’s Disease over the past 12 years, joy and gratitude radiate from Maureen Kennah-Hafstein.

On Sept. 17, the Salmon Arm resident and former Sicamous teacher underwent long-awaited Deep Brain Stimulation (DBS) surgery in Vancouver, which involved the placement of two electrodes in her brain. If you feel the top of her head, you can feel two small bumps, which she laughingly calls her antlers.

She has a little square antenna that she can place on her skin next to a pacemaker device that was attached just under the skin of her abdomen during surgery. The antenna has a short cord which connects it to a hand-held stimulator.

When she needs to increase the brain stimulation in order to reduce the medication she has to take, she just presses a button, much like you might increase the volume on your cell phone. What she does is checked by a team of nurses during her regular appointments in Vancouver.

The transition has been full of highs and lows, both physical and emotional. The only side effects at this point are slightly slurred speech and some drooling.

Over the next few weeks, the process of adjusting the stimulator and her medication continues, with the goal of leaving her on as little medication as possible. Already her previous allotment of 36 pills per day has been reduced to six.

The night before the interview she was unable to sleep because of restless leg syndrome. She used the stimulator to get rid of the tremors.

Read more: Shuswap woman with Parkinson’s receives long-awaited date for surgery

Although Kennah-Hafstein describes the actual surgery as “the hardest thing I’ve had to endure in my whole life,” she finds the whole DBS treatment nothing short of miraculous.

“Sitting across from you, I’m not going into these crazy body movements… I have a calm body inside which I haven’t really had for 12 years. People don’t realize what you see on the outside (all the movement that comes with the Parkinson’s medication) is amplified on the inside.”

Her overriding focus remains gratitude and joy.

“You realize you could go down the dark path or the light path. I chose the light path because there’s so much more you can get from that. Joy and gratitude is a lot more enjoyable and satisfying than doom and gloom.”

She repeats her favourite expression, which she admits to both hating and loving. It sounds really bad, she says, but is actually a sign post.

“It’s never so bad it couldn’t be worse” is the expression. She thinks with any trial in life, people have to go down the dark side to appreciate there is another way to look at it.

Read more: Salmon Arm woman hopeful after undergoing surgery for Parkinson’s

“I chose to look at it as a lesson I have something to gain from. So now I’m overflowing with gratitude – I can’t describe to you how much gratitude.”

She says the best gift you can give to anyone is that positive energy, the light side.

“I can be a good example to my children and everybody. I’m not the only person who has endured this suffering,” she says.

“If everything was rosy all the way along, you wouldn’t learn anything. You wouldn’t learn gratitude to the depth I’ve learned it. I feel that I’ve been given the gift of understanding that.”

Shuswap MLA Greg Kyllo, whose children she taught in school, recognized the contributions of Kennah-Hafstein to improving treatment for people with Parkinson’s in the Legislature recently. She says the speech was the icing on her cake.

Once the adjustments to the stimulation and medication are complete, Kennah-Hafstein expects to have 10 years symptom-free, “but I am pushing for 20. Every bit of joy and gratitude I can get out of myself will help get me there.”


@SalmonArm
marthawickett@saobserver.net

Like us on Facebook and follow us on Twitter

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Severe thunderstorm watch in effect for Okanagan, Shuswap

Environment Canada is forecasting strong wind gusts, large hail and heavy downpours in parts of the Interior

WorkSafe BC conducted 70 inspections in the Okanagan amid B.C.’s reopening plan

WorkSafe BC has conducted 100 inspections at restaurants across the province since May 19

City hall refurbishment comes in nearly $500,000 over budget

Revelstoke City Council voted unanimously to move forward despite the increased cost

Williamson Lake to open June 1

The park will be open for day use as well as camping

New task force to look at closing roads to vehicles in downtown Revelstoke

Councillor Cody Younker moved to have the Economic Recovery Task Force do stakeholder engagement

QUIZ: Test your knowledge of the world of summer sports

In a typical year, there are plenty of summer sporting events and tournaments held across Canada

Arena served Summerland for 26 years

Warm winters meant short ice seasons in early 1950s

District offers safety tips after cougar spotted near Lake Country school

The animal was seen on a walking trail near Peter Greer Elementary Saturday morning

Surrey mayor’s party under fire for ‘sickening’ tweet accusing northern B.C. RCMP of murder

Mayor Doug McCallum says tweet, Facebook post ‘sent out by unauthorized person’

Father’s Day Walk Run for prostate cancer will be virtual event this year throughout B.C.

The annual fundraiser for Prostate Cancer Foundation BC has brought in $2.5 million since 1999

Similkameen winery co-owned by Dr. Bonnie Henry

B.C.’s provincial health officer is part of the original ownership group of Clos du Soleil in Keremeos

Shuswap man reported missing by RCMP has been found unharmed

Salmon Arm resident apologizes for having caused anyone concern

Emergency crews rush youth to hospital after quadding accident in West Kelowna

West Kelowna Fire Rescue’s new off-road vehicle was used in the rescue

Dr. Bonnie Henry announces official ban on overnight kids’ camps this summer

New ban comes after talking with other provincial health officials across the country, Henry says

Most Read